Life Update (Diagnosed with Epilepsy)
This year has been a major roller coaster for us behind the scenes, & today we’re finally ready to fill you in on everything that’s been going on. This video is the long story of my recent epilepsy diagnosis. Thank you for being here 🙏 Go to our sponsor https://betterhelp.com/kandn to get a special discount off your first month of therapy with BetterHelp & get matched with a therapist who will listen and help ❤️
Episode 929 | Filmed June 2024
https://www.epilepsy.com/what-is-epilepsy/seizure-types/focal-onset-aware-seizures
0:00 I have epilepsy
1:06 Goals for this video
2:59 My Epilepsy Journey
6:04 the day everything changed
10:03 first doctor’s appt
13:14 back to 2018 problems
16:48 my memory issues
19:16 I love you
20:58 Neurologist Diagnosis
23:43 EEG and MRI tests
27:25 test results
29:48 my treatment plan
32:52 our future plans
30 Comments
Wishing all the best to individuals and families that don't have a social media presence and for those suffering from life threatening conditions,
Thank you for sharing this, Kara 💕 I was recently diagnosed with epilepsy at 25 years old and it has changed everything for me. It feels like a lot of people don’t understand and minimize seizures/epilepsy. Thank you for showing your emotions, I feel seen and understood. I’ve never watched you or your husbands videos before, but I’m sending love and positive healing vibes your way 💕
Nate I’m not being mean but I think you look better without the beard and I’m very sorry for your wife
Dear Kara, thank you for being so open and vulnerable with your story. I am a stay at home mom to 8 children and am unable to travel because of all the mom duties, so I love your videos because I feel like I get to experience parts of the world I would never visit myself. Also a couple years ago my daughter was diagnosed with epilepsy. It has been a hard few years navigating this new normal, medications, driving restrictions, changing diet, and supplements etc etc. You know! All the things. Thank you for sharing your journey. It is so comforting to know others are walking through this as well. And I am praying for you as you walk this road.
Thanks for sharing your story! It will massively help someone out there and it’s so amazing you have your partner supporting you through all this. Wish you the best in your recovery and treatment. You guys are amazing 👍🏽👏🏽
It’s okay I can relate to you because I had epilepsy. I started when I was 3 years old. I had multiple seizures.❤❤❤❤❤ hope your doing better
Kate i have with seizure disabilties my entie life they believe it was caused at my birt by them i stead of grabbing me by my chin the doctor forspece grabbed me by my head i have little indents but i am able to travel for boeling and have to take genriv for keppra and dilitain rest of my life
I have grown to adore the two of you. I continue to fuel my fairly new passion for travel. Watching this view made me so happy that the two of you are living life to the fullest because you never know what life will bring down the road. Have no regrets and I really think neither of you have too many regrets. Your positivity is encouraging. I’m so sorry that you are dealing with this health issue. I pray that you will be able to manage the epilepsy without too many difficulties. Your openness and honesty makes you even more lovable! ❤
Thank you for sharing this, it really might be life saving for someone to follow up on their health and look into something that is scarry to find out… Good luck and best of health to you!
I am a new sub after my girlfriend recommended your page through the 4daagse video. I watched that and was hooked! Then watched First Class France and now this and I just wanted to say, you two seem to be wonderful people and I think you did a great job sharing this very emotional and personal story to us as viewers! Since you took the time to make this I wanted to take the time to write a comment (something that feels pointless a lot when you see 11,475 people already commented lol). I wish you the best and I will be following your videos and enjoying how fun and cute you two are together! My gf and I just took a trip to Thailand, which is what I think led to your page, but now we have the travel bug! Have a wonderful day!
You guys are NOT alone. Its ok to cry and get those emotions out. Education and communication takes the fear away, because then you know how to approach it and what to do. Stay positive, lean on each other, protect your peace, ask lots of questions from other people who are living successfully with Kara's diagnosis. Know that people are praying for you, support you, love you and will be there for you both. KEEP living your best lives because it will be encouragement to others! Remember we can't always control what happens to us, but we can control how we respond and react to it! ❤
Kara, you are brave for sharing your diagnosis story and Nate, you are so brave for being such a supportive husband/partner. You are so fortunate to have each other to get through this life hurdle. I have Type 1 diabetes, and I have a medic alert bracelet. So after watching your episode of traveling alone to France, I would highly recommend it, just in case of an emergency. Sending you much patience and well wishes to you both!
i have a very high understanding of this condition. i am a full time carer for my wife who has severe epilepsy. my support is with you
Honey, you are going to be the best you possible. Don't try to be anything or anyone that you aren't. I'm facing some health issues that have been plagueing me for quite a few years, too. I'm also battling Social Security to get my disability (again, this has been ongoing for quite a while). You will be okay. You just have to find what works best for you and your lifestyle. Best of luck and best wishes for your future.
I have epilepsy too 💜
I'm reminded of a medical calendar I used to have with funny chart notes in it. One was from an ambulance attendant who interviewed someone about a seizure patient. "He has eucalyptus fits time to time. He's supposed to be on medicine, but he's not taking it. I think it's peanut butter ball." I looked it up; sure enough, they used to prescribe phenobarbital more often for epilepsy. Be well Kara. Follow doctor's orders, but I don't think this will keep you from living the dream.
..Dear Kara,You truely are an inspiration..Keep the spirit up.We will be praying for your health recovery journey.You and Nate's videos are an inspiration to someone out there!We love you and You got this!!
Love n light to you both and thankyou for sharing your journey 💜🙌💜
You two are my favorite couple, and I have followed you since the beginning. Sending you lots of love, prayers, and support!
Kara im sooo sorry, I used to watch y’all’s videos everyday since the beginning and then I stoped for some weird reason that I do not know why tho and then this video popped up on my fyp today and I was like omg it’s Kara and Nate so I clicked on the video and realized it was about Epilepsy and now I’m crying because I was not expecting this to happen, I’m so sorry you have to go through this and I hope it gets better. ❤️🩹😔. Sorry this is like a big paragraph lol.
I was diagnosed with a Stage2 Plemorphic Xhanastrocytoma and this was a Benign Brain Tumor back in 2020 here in Cebu Philippines as a US Citizen I had more than 10 hour crainiotomy and the tumor was fully removed and I have been taking Keppra medication 2000 mg everyday for more than 3 years and I also had seizures as well just be strong and there is a lot of love out there, just be strong…
Per the reference to talking to doctors, Neurologists get 4 years of extra training after med school so it’s very normal for others to not understand.
I’m so proud of you two coming from a pediatric epileptic neurosurgery perspective ❤️ stay strong. With love.
The stew crew (on YouTube) a you g couple from Tennessee (Carlin and Evan) went through this about a year ago and the chronicles the whole experience on YouTube.
I have seen a few of your vlogs in the past. But I just saw your first class on Air France and this.
Praying for both of you and your help and well-being!
I too, have had a few episodes of fainting and seizure-like "events". I have been told it was a lack of sugar. (Hypoglycemic).
We shall see what happens from here on out 🤞!
Thanks so much for sharing! It definitely raises awareness and makes me be more conscious about paying attention to those small unexplainable things!
I’m really sorry it has been so hard and I truly hope you guys can figure out what suits her best (medication and sleep)!
I must say…guys, taking it a “little bit” slower…doesn’t mean not enjoying it anymore or not being able to do it at all! I just hope you get to find the balance 💛 and even without the diagnosis…at some point the slow down was going to come haha age always grounds you haha!😅
I was 63 when my first seizure occurred. My routine is to wake and start my day at 5:45am everyday. On this particular day, I woke as usual. I peered at my wife who was sleeping soundly. I thought what the heck, I'll grab a few more Z's and get back to sleep. The next thing I woke to 2 EMT's and 2 Police officers in my bedroom asking me random questions. I said what are you all doing here? My wife said, you had a seizure. I said no I didn't. She said look at the bed sheets. I bit my tongue to the point the sheets were loaded with blood. Well, after testing a few different drugs, BTW Keppra didn't work for me, I am now using Breviact. Works so far. But still have auras, tastes, smells, vertigo etc. I guess the new normal. Take good care folks. Triggers can be somewhat controlled. Don't get dehydrated!!!.
As a Neurology resident. Thank you for sharing your experiences. I know this will help so many people out there.
I don’t know if you guys will ever see this, but my brother has type 1 diabetes and I truly understand the trauma of going through watching someone seize – it’s the scariest thing in the world. Made me cry for you hearing you guys talk about it. Will be praying for you!
Hi Kara and Nate, my name is Rex and I've had Epilepsy ever since I was 7 years old – I'm 60 now. I spent my whole life going to doctors and going through blood tests and so on. Thank you for sharing. YouTube is a great place to connect to others who can relate to what you are going through. Stay strong and take care of yourself. Cheers!